Fay Skevington, Charity Development Manager
Fay has a young child, TJ, who has coloboma and mild microphthalmia. She has been a member of MACS since February 2014. Based in the Peak District, she is an experienced government policymaker who brings expertise in project management and policy making to MACS.
Kaja Kosla, Fundraising Events Coordinator
Kaja joined MACS in January 2014 and is responsible for the London Marathon and other running events by co-ordinating fundraising and providing training support. A member of the 100 Marathon Club, Kaja also runs her own annual double marathon in Liverpool.
Helen O’Brien, Administrator
Helen joined us in October 2016 and looks after a wide range of administrative tasks for MACS. Before working with us, Helen worked with children with special needs for 5 years so she knows how important it is that children get the support they need. She looks forward to meeting many of you at a MACS event soon.
Robbie Crow, Chair
Robbie lives in Scotland and is registered blind, having been born with bilateral Microphthalmia and Coloboma. Robbie’s family joined MACS in 1996 when he was only 5 years old and he has been a member ever since, having benefitted from the entire spectrum of MACS’ services throughout his childhood and teenage years.
Outside of MACS, Robbie works in the accessible outdoor education industry and often travels internationally to give keynote and motivational speeches, and to give advice to organisations who want to become more inclusive and empowering for disabled people. As Chair of MACS, Robbie is responsible for leading the overall strategic direction of the charity, as well as overseeing the management of its services and the overall development of the organisation as a whole.
Robbie is a keen traditional musician, a sailor, and a blogger for The Huffington Post.
Gary Murphy, Treasurer
A finance manager by day, Gary puts his skills to good work as MACS’ Treasurer. Gary’s oldest child, Lily, was born in 2007 with bilateral Microphthalmia and she also has some developmental delays. Finding out about MACS was a lifeline for Gary and his wife Rachael. Gary still recalls the relief he experienced when he called MACS’ Helpline and was finally able to speak to someone who understood how he was feeling. Lily is now five and has recently started school.
Jenny Lupton, Secretary
Jenny has been a trustee since 2010. Jenny’s son Ben, was born with slight Microphthalmia, Nystagmus and Gluacoma in his left eye and severe Microphthalmia in his right eye. Ben has also been diagnosed with Peters Anomaly Plus Syndrome and Sox2 Syndrome and has Intermittent Hearing loss, Microcephaly, Dyspraxia and developmental delay. Jenny is a major force behind Team MACS – helping to make sure that our fundraisers are supported and motivated.
Teresa Gordon, Observer
Teresa’s daughter Kara, born in 2008, has Microphthalmia with dense cataract and Nystagmus in her right eye. After attending a MACS Family Weekend with her children and husband Mel, Teresa felt she wanted to give something back, becoming a regional supporter, before standing as Trustee at the 2014 AGM.
Teresa is really happy to be part of such a great team.
Aaron Eaton, Trustee
Aaron lives in Ipswich with his wife Jodie and two young children, Madison and Aurora, who has right eye microphthalmia.
Aaron and his family discovered MACS shortly after the birth of Aurora and have been interested in how they could support the work of the charity further.
Aaron sits on sub-committees for Finance & Governance, Grants, and Marketing & Communications. He is a health and safety professional, with a keen interest in football and music.
Gillian Bramley, Trustee
Gill is originally from Leicestershire but has lived in London for about ten years. Gill was born with bilateral microphthalmia & coloboma and only made contact with the charity in 2013 after spotting a MACS stand at a QAC Sight Village event. Having grown up with MACS conditions, she understands the struggles that people with MACS conditions face.
Gill works full time for the civil service in central London. Gill sits on the Grants & Fundraising committees. Apart from spending her spare time as a trustee for MACS, she also enjoys spending time with her guide dog Flo. Gill also also has a keen interest in nail art.
Jonathan Attenborough, Trustee
Jonathan has bilateral microphthalmia, coloboma, and nystagmus and has been associated with MACS since he was a young child.
Based in Fife, Scotland, he is studying Finance full time and previously worked at RNIB Scotland for 5 years where he gained experience in partnership management, health professional liaison, and working with young people. In his spare time Jonathan is a keen guitar player and enjoys music and football. Jonathan joined MACS’ Board of Trustees in April 2016.
Caroline Hornby, Trustee
Caroline lives in Nottinghamshire with her husband Steven and their 3 children Jake 6, twins Joshua and Reece 3 who has Bilateral Anophthalmia and is partially deaf with growth development delays.
Caroline and her family found out about MACS after birth of their twins in Salisbury, Wiltshire where the charity have provided valuable support and guidance and now feels she would like to help out and be more involved within the MACS community.
Caroline sits on the Caravan Sub-committee and volunteers with the administration of the caravans in Cornwall and Dorset. She is currently working towards a CIPD diploma and in her spare time she enjoys sewing and cross country.
Becky Hardisty, Trustee
Becky is a MACS adult whose family have been MACS members since she was seven. Becky was born with bilateral Microphthalmia and Coloboma. Her elder brother, Matthew, was born with bilateral Anophthalmia.
She currently works as a social worker with adults with a range of disabilities and needs. Shes live in West Lancashire with her son Connor and partner Oli.
Actress and presenter Jodie burst onto the scene after winning the BBC's ‘I’d Do Anything’ and going on to play the part of Nancy in the West End show Oliver!
It was while playing Nancy that Jodie met MACS member Toby Ott…
Through taking part in shows like Oliver! I get to meet the most extraordinary people and one of them was Toby. Through him, I found out about Microphthalmia, Anophthalmia and Coloboma - all conditions I never knew existed.
Learning more about MACS, I very proudly became a patron. For me it’s a total honour to be invited, not only into a charity, but into one big family. It’s great to see everyone working together to make a big difference to peoples’ lives.
Read more about Jodie at http://www.jodieprengerofficial.com
The Rt Hon. the Lord Blunkett
Lord Blunkett has previously held office as Secretary of State for Work and Pensions, Home Secretary and Secretary of State for Education and Employment. He has been blind since birth.
Since first coming into contact with MACS at a fundraising event, I’ve been full of admiration for the charity, the youngsters and their parents and carers.
By giving the support which enables everyone to cope practically and emotionally, MACS is offering positive mutual self-help. MACS is also raising the profile and awareness of these conditions.
I hope everyone who can, will give what they can, to help MACS to offer the help, advice and interventions that are needed.
Mr Richard Collin MA, FRCS, DO, FRCOphth
Mr Richard Collin is a leading specialist in Oculoplastic surgery focusing on microphthalmos, ptosis, eyelid anatomy, orbital implants, conjunctival replacement and eyelid tumour management.
Richard has been a Patron of MACS for many years.
He continues to be a source of invaluable information and guidance to the many MACS families who have visited his clinic.
Chris Ashton is an English rugby union player who has represented England in both Rugby League and Rugby Union and is a key player for Saracens.
Chris has a close link with MACS as his cousin Ben has bilateral anophthalmia. Chris says he is ‘proud to be part of MACS and help support it in any way’.
All at MACS are delighted that Chris has come on board and look forward to working with Chris to help promote MACS now and in the future.
An entertainer and stunt man for film and TV, Martin has been involved with the charity for many years and has seen both MACS, and the children and families it supports, grow and develop. Martin is both honoured to become a patron and enthusiastic about supporting the charity into the future.
To be part of MACS is truly humbling. Children should never feel vulnerable, left out or subject to negativity and that is why MACS is so special. I look forward to meeting more MACS members, becoming a friend and making some great memories. Thanks for giving me this opportunity.