We know that finding out your child has a MACS condition can be a devastating experience, leaving you feeling scared and alone. But you are not alone, we are here to support you now and throughout your journey.
My parents were told that I was blind. They wondered if I’d ever make friends or live independently. Through meeting other families, MACS told them the answer could be ‘yes’.
If you need emotional support, you can call Jenny, one of our Trustees and our Family Support Officer, on 0800 169 8088. Alternatively, you can join our Facebook Support for Families group, this is a closed group only for MACS members where you can ask any questions you may have. The group has over 450 members, all of whom either have a MACS condition or a family member who do, so whatever your question you should be able to find someone to help there.