FW 2018 breakout sessions for adults

Family Weekend 2018 breakout sessions

Looking after you when times are tough

Feeling stressed out? Overwhelmed with all you have to do, for others? Exhausted, and feeling constantly at the bottom of the pile?

Let’s take a morning to look at self-care in situations that are extra-ordinary.

Regular self-care helps you to maintain your well-being in order to manage the challenges of your everyday more positively and effectively.  Self-care is not just for emergencies, nor is it bubble baths and spa days. Regular self-care can enhance your health and well-being, manage your stress and maintain calm in hectic times.

Understanding your self-care needs and working towards a well-being plan will help you to achieve more balance, manage challenges, honour emotional and mental health needs, foster and maintain relationships and achieve an equilibrium across all facets of life.

This workshop will unpick current thinking around self-care and re-pack it in a way that means you can sustain health and well-being in the long-term.

From the session, you can expect to:

  • Have a clearer idea of what self-care means for you
  • Understand your individual self-care needs
  • Create the beginnings of a plan of how to engage in self-care regularly
  • Come away with the knowledge you have given yourself the precious gift of time and attention
Education Health Care Plans (EHC Plans)

This session will look at Education Health Care plans, what they are there to do, what protection they can offer children and families and how these plans can be requested, compiled and utilised.

By the end of the session, we hope you will:

  • Understand what an EHC plan is and what they are designed to do;
  • Know how to request an EHC plan for a child or young person;
  • Know what are the separate parts of the plan and what is their purpose?;
  • Be aware of what statutory and legal protection they can bring;
  • Know how to compile a plan;
  • Be aware of what professionals can input into the plan, to ensure it reflects the end user;
  • Know of the legal language, which must be used to make the plan robust and legally enforceable; and
  • Be aware of the alternative mechanisms to an EHC plan, for educational support, for your children.
Stepping Stones parenting (AKA Triple P)

This session will be run by Judy Wright. She has been a Social Work Practitioner/Consultant for more than 20 years, working with children and their families in a variety of settings. As well as working in within the Local Authority, she provides a variety of services including parenting support, direct work with children, safeguarding training, and Triple P.

Our families are all different, with strengths and difficulties, ups and downs, sometimes sad and sometimes full of joy when we celebrate those special moments. For children with additional needs there are added challenges to overcome and parenting can become more stressful. Yet every child is

special and unique, and needs to be unconditionally loved, nurtured, and safe in order to develop their full potential.

What is Triple P?

The Triple P – Positive Parenting Program ® enables parents to develop the skills to raise confident, healthy children and teenagers, and to build

stronger family relationships. It also helps parents manage misbehaviour and prevent problems occurring in the first place. But it doesn’t tell people how to parent. Rather, it gives them simple and practical strategies they can adapt to suit their own values, beliefs and needs.

It is one of the world’s most effective parenting programmes. Based on evidence from ongoing scientific research, with more than 90 trials and studies around the world showing it works - regardless of a family’s culture, country or situation.

Pyramid Club for Parents

While the children are enjoying lots of fun activities and making new friends, we will also be offering a three-hour workshop for parents, in order to share the thinking behind the clubs, and to support parents to develop their child’s social and emotional skills. Ideally, the parents who attend the parent session will have a child in the children’s group, but, if spaces are available, other parents can attend as well. The session will be very relaxed and fun – just like the children’s group.

Prof. Nicky Ragge Research Update
Dr. Mariya Moosajee Research Update

Dr Mariya Moosajee's Research Group presents: 

How do our eyes grow with MAC?

We have been using zebrafish to help us uncover genes that are needed for proper eye development and we’ll talk to you about how this knowledge is helping us to identify new coloboma causing genes.

We'll show you how we can grow human 3D models of the developing eye from stem cells derived from a patient’s skin and how this will help us to investigate the causes of microphthalmia and develop new therapies. 

There will be an update on MACs contribution to the 100,000 Genomes Project, which hopes to identify new human disease causing genes and develop personalised medicine with the aim of treating rare diseases. 

During our session, we hope the kids will join us to model their own perspective of an eye using modelling clay; their sculptures will be 3D-printed and used to create a larger piece of tactile art for public display.  

We need families to help us with our MACS research so please do come along and visit us! 

There will be at least 5 members of Dr Moosajee's research group attending the session so plenty of opportunities to ask questions and learn more.

Employment and Access to Work

Family Weekend 2018 additional sessions

EHCP 1:1 advice - limited availability
Sandra Fernando Experiment
Prof Nicky Ragge Drop In Session