Supporting children born without eyes or with underdeveloped eyes

Having a child born with a MACS condition can be devastating especially, if like many parents, you had no idea that your baby would be affected. If you are a new parent and feeling overwhelmed by the condition and scared for the future, please get in touch. If you have an older child and need guidance from other families around schooling, your child’s relationships, or other issues, we'd love to hear from you too. 

MACS provides emotional and practical support to parents or carers of children born with MACS condition of any level of severity. We also welcome adults born with a MACS condition, who may have found our charity for the first time.

Your first port of call will be Jenny, MACS’ Family Liaison Officer. If you need to speak to someone who understands what you are going through, please give Jenny a call on our free Helpline number - 0800 169 8088.

If you decide to join MACS, we can put you in touch with your local Regional Supporter who can offer support and help you to contact other families in your area. You will also be invited to participate in group activities and events taking place in your area. Please visit our Join us page to find out more.

We also provide opportunities for families to relax, have fun and network with other families at our annual Family Weekend. It's also a great opportunity for children with MACS conditions and their siblings to meet and get to know other children with MACS conditions who may be experiencing similar issues in their lives. The Family Weekend takes place each year during the early May bank holiday weekend.

"I feel lucky to be part of MACS. Out of all the other charities for blind and visually impaired young people, MACS seems to organise the most and be the most family friendly and inclusive." MACS member.