Supporting children born without eyes or with underdeveloped eyes

At MACS we know how important it is to have the support of people who understand what you are going through - during both the bad times and the good.

Our regional support groups provide you with opportunities to access a network of families in your area, share experiences of local hospitals and medical procedures and participate in a range of local activities.

Linking in to our regional support groups is helpful not only for you and your MACS child, but for siblings, extended family members and carers too. 

Being a sibling of a disabled child can be particularly tough. They may struggle with the amount of time and attention that is spent on their brother or sister, resent having to attend endless medical appointments, or feel sad and guilty that they are healthy and well, while their sibling may be having difficulties. Joining a regional support group, means that siblings can also meet other children who share their worries and concerns.

Debby says:

"When you find your child has been born with one of the MACS conditions you worry about the rest of their lives. My husband and I felt alone and scared for our son Adam's future. Finding MACS meant finding others who could support us through our traumas, but also share in our child's successes and really understand what their achievements mean to us."

For more information about your regional support group, please contact or download a PDF list of your regional co-ordinators and contact details by region here - Regional Supporters' Directory