MACS started life in 1993 as a small support group run by, and for, parents of children who were born with Microphthalmia (small eye/s), Anophthalmia (no eye/s) or Coloboma (a cleft in the eye/s) or a combination of these conditions. You can learn more about the conditions here.
Every year in the UK, an estimated 114 babies will be born with MACS conditions. Many children will have additional needs or other health challenges. Receiving the diagnosis may be an isolating experience for parents; they may feel hopeless and alone.
MACS now helps over 3,000 people from more than 1,000 families across the UK, supporting them at every stage of their journey by providing peer support, practical help and opportunities to take part in life-changing activity trips.

Our History
We owe our origins to a journalist from The Observer who, in 1993, was investigating the possibility that Microphthalmia, Anophthalmia, and Coloboma, were caused by pesticides (scientific proof of this has not been […]

Our Services and Support
MACS welcomes all UK-based children and adults, parents and carers as members to our warm and supportive community. Our services provide a lifeline to those who experience the impact of […]

Our Team
Our Staff Amy Francombe, Director of Charity Development Amy joined MACS in August 2021 as the Fundraising and Communications Manager, moving in to the role of Director of Charity Development […]

Our Vision, Mission and Values
Our vision Our vision is that people in the UK with MACS conditions and their families are empowered to thrive and confidently lead fulfilling lives. That’s why we work hard […]

Our Impact (Annual Report & Accounts)
In 2023, the MACS Trustees initiated a comprehensive evaluation of the charity’s services and impact. This review, shaped by direct input from members, aimed to guide the charity’s further development. […]
