About MACS

Our vision is of a world where all people affected by MACS conditions enjoy the same opportunities as everyone else.

Our mission is to become the leading authority on MACS conditions and to provide comfort and support to people impacted by them.  

Our core values are:

  • Offering acceptance and inspiring trust

  • Giving support

  • Providing opportunity

What we do – our impact

MACS is here to support our members at each stage of their journey. We provide: Emotional support through our helpline and Facebook support group Financial assistance by giving our members grants […]

Trustees, Staff and Patrons

Our Staff Liz Bates, Chief Executive Officer Liz joined MACS in May 2019, as the Chief Executive Officer. Liz has previously worked for DeafBlind UK for 7 years as a […]

Picture shows a smiling child

Member stories

Meet some of our members! Parents of children with a MACS condition share their stories and experiences since receiving their child’s diagnosis.

Our History

We owe our origins to a journalist from The Observer who, in 1993, was investigating the possibility that Microphthalmia, Anophthalmia, and Coloboma, were caused by pesticides (scientific proof of this has not been […]

Image shows a group of MACS young people on a sailing voyage

Annual Report & Accounts

Our Strategy In 2018, MACS did a comprehensive Review of Services in which we consulted with members through workshops, online surveys and telephone interviews. The Board used the information gained […]