Useful resources for MACS families
Here you’ll find a range of helpful resources created to support children and families affected by Microphthalmia, Anophthalmia, and Coloboma.
📖 What makes you, you?
A beautifully illustrated book that helps young children understand that being different is what makes us extraordinary.
👁 My Eye Man
A gentle and reassuring story that helps explain the process of fitting prosthetic eyes to young children.
📄 All about MACS Leaflet
A general information guide that introduces who we are, what we do, and how we support individuals and families affected by MACS conditions.
🖼 "MACS Means..." Posters
A set of 11 posters designed to raise awareness about the three MACS conditions and highlight how MACS makes a difference in the lives of those we support.
🎉 Fundraising Materials
All of our fundraising materials – including posters and sponsorship forms – are available at the bottom of our Fundraising Page.
Other Holiday Charities, Family Fund & Resources
Our services are open to anyone affected by a MACS condition.
If you need any of our resources in alternative formats, or are finding it difficult to access our support in any way, please get in touch at sharon@macs.org.uk – we’re here for you.
Useful websites
Here are some organisations and resources that offer valuable information, support, and services for individuals and families affected by sight loss or MACS conditions:
🌟 Changing Faces
A UK charity that supports and represents people with visible differences on the face, hands, or body, helping to build confidence and challenge stigma.
📋 Charity Commission – MACS
Find out more about MACS and our official listing on the Charity Commission website.
♿ Euan’s Guide
A disabled access review site where people share their experiences of accessibility in public places across the UK.
🧬 Gene.Vision
A comprehensive resource for anyone wanting to learn more about rare genetic eye conditions – including patients, families, and professionals.
🐕 Guide Dogs
Helping blind and partially sighted people gain mobility and independence through guide dogs and other life-changing support.
🔧 Humanware
Provides assistive technology and products designed to enhance independence for people who are blind or visually impaired.
🧸 Newlife Charity
Supports children with additional needs by providing essential specialist equipment, emergency loans, grant funding, and free sensory toy hire through their Play Therapy Pods.
👁 National Artificial Eye Service (NAES)
Part of the NHS, the NAES offers manufacturing, fitting, and support services for people who use ocular prostheses.
👓 QAC Sight Village
Organised by Queen Alexandra College, these events showcase the latest technology, support, and services for people who are blind or visually impaired.
📚 Royal National Institute of Blind People (RNIB)
A leading UK charity offering advice, information, and support for anyone living with sight loss.
🛠 Sight and Sound Technology
Supplies innovative products and assistive technology for people who are blind or visually impaired.
👨👩👧 VICTA
A charity supporting children and young adults who are visually impaired, and their families, through grants, events, and opportunities for growth.