Ellie’s story

Meet Ellie

Ellie was our firstborn. We were aware there were going to be challenges before she was born, but when she was born, the extent of the issues she faced was greater than we’d ever imagined. We came to MACS with her at 4 months old devastated as new parents not knowing what to do, where to turn to.

I can remember the first time we arrived at the MACS weekend, seeing all these kids that had similar problems, thinking, my goodness there is light at the end of the tunnel.

I can remember the first time we arrived at the MACS weekend, seeing all these kids that had similar problems, thinking, my goodness there is light at the end of the tunnel. And I think, year on year, it has helped us and inspired us to know what children can do irrespective of what special needs they have because they can excel in a whole range of different ways. And then as time has gone further on, sadly you see new people coming through with newborn babies and it’s about trying to be there and give them the inspiration and support when they most need it.

One of the things about the MACS Family Weekend, is it allows the kids – Ellie and her sister Ruby – to mix with all the other children and all the other adults. Ellie gravitates more towards the adults but she gets a huge amount of pleasure from standing next to people, holding their hands, taking pictures of them. Ruby gets a great deal of pleasure from talking to some of her friends who are siblings of children with special needs or particular conditions. I think it’s really important that the siblings get an opportunity to meet other siblings because it shows them that they’re not alone, and it shows them that they’re not the only one who are facing challenges, because they do put up with a lot.