28th February is #RareDiseaseDay! While here at MACS we wouldn’t describe MAC conditions as ‘diseases’, we are joining in to take part in this worldwide campaign to raise awareness of rare diseases and conditions. Below, MACS members of all ages describe their eye conditions in their own words.
Jacob - "I have dancing, bouncing, angel eyes"
Jacob, 3, tells us about his Coloboma
“If you have any sort of condition, there is nothing different between you and any other kid that’s around”
Jessica describes her condition, Microphthalmia, the process of fitting a prosthetic shell, how MACS can offer great support, and offers words of wisdom to MACS young people and parents.
Jessica, 22, tells us about her Microphthalmia
Oscar, 11 - “I like my Coloboma! It doesn’t stop me doing all the things I like doing and it makes me different, and I like being different!"
Oscar, 11, tells us about his Coloboma
“My eye doesn’t define me, it helps me through my everyday life”
Millie talks about her conditions, Microphthalmia and Coloboma and how they affect her in her everyday life.
Millie tells us about her Microphthalmia and Coloboma
“Because of my visual impairment, I've always been quite a determined, tenacious person and if I set my heart on doing something I try to achieve it.”
Sue tells us about her Microphthalmia.
Sue tells us about her Microphthalmia
“It’s like there’s a sheet of frosty ice on my eyeballs” – Zara, aged 7, describing her condition.
Zara and mum Kelly tell us about their Microphthalmia and Coloboma
Megan, 20 - “Coloboma doesn’t stop me doing anything! Mountain climbing, canoeing, abseiling, night walks, cooking dinners and performing at the Royal Albert Hall"
Megan tells us about her Coloboma